We have some good news here! It seems like Annelise’s GI bleed has slowed or stopped. We finally made it two weeks without her needing another transfusion, and the symptoms of severe anemia haven’t returned. We’ll check on her blood count next week.
It took some effort in the beginning of her life to find doctors who would outright say yes to providing the lifesaving interventions that she needed. I know y’all have come on that journey with us in many different ways over the years. I couldn’t be more grateful for her start in Omaha.
And it makes me so happy to see the team she has now in Long Beach working hard to figure out the best way to treat this mystery GI bleed in our precious girl. Annelise’s case was added to a multidisciplinary conference that is held every month where they discuss complex cases that could use some extra brain power.
They agreed on some strategies to try before laprascopic surgery is put on the table. If the bleed comes back surgery might be the next step, or God could have given us a “yes sure now” answer to our prayers for healing of her little guts. Time will tell, God is good always, and I’m so happy for this reprieve with a happy Annelise too!😍🤩
