6/6/2021

 Some of the week's silliness😁

Love this girl!  4 days until the big TWO!  We will be painting kindness rocks as an annual celebration of our joyful girl. 🎨🤩

I loved seeing all of the rocks last year that our extensive support community created in celebration of her 1st birthday!  Some were even delivered to our home, and I've moved the rock garden to our kitchen window so I can see them every day🥰

So if you have some time this week, or next, or any time, leave a sweet rock somewhere to brighten the day of someone who passes by.  

Text or send me a photo!❤ we will add the photo to the book I'm keeping for her.

6/3/2021

 2 years ago today Kevin and I arrived in Omaha to wait for Annelise to be born! June 10th is her birthday!  I'd write about how life changing that trip was, and the memories of that day.... except a very cute and adorable almost 2-year-old seems to currently be on a party all night mission.... and her old lady mama is finding it hard to put words together.😴  All the feels are still there in my hearts memory though! 🥰 As well as the ways we saw God's goodness during that time, and the support we had from our people.  We count every day with Annelise a blessing, and we are so thankful that Omaha was there for us even before day 1!💖

5/28/2021

 We got out for a double appointment day today.  ENT and Pulmonologist.  Both were routine, in-person appointments.  She has had telehealth with ENT for the past year, so they wanted to see her.  We saw the Pulmonologist in person last time too, but I'm happy to go in so the Pulmonologist can listen to her lungs, especially since her last ultrasound showed that she still has a small pleural effusion on her right lung.  It hasn't grown at all, and her lungs sound "fantastic" according to the Pulmonologist,  so we are thankful for that! They don't want to aggressively investigate the pleural effusion since it isn't bothering her breathing ability.

Another thing we are thankful for is our new-to-us fancy stroller!  We were blessed by friends who have a growing, thriving girl who outgrew it! It has a ton of space for all the things we need to bring with us, and Annelise can sit and face us, instead of being in her carseat, which isn't her favorite for walks.  It was so nice to get out and walk around like Kevin and I used to do before we had Annelise.  Now that it is easier and more enjoyable, I see us doing it more often!

5/24/21

 She is looking so big to me!❤

We had a way too exciting morning when, for the first time, I was investigating the strange noise Annelise was making, and found her trach was still attached to the velcro ties that go around her neck... but the trach was out of her body! I've never seen Kevin move as fast as he did this morning!  It all worked out and she was even smiling at all the movement that was happening🤦‍♀️. She held her oxygen saturation level at 99 until we got her breathing through her trach again🎉  Praise the Lord that she was able to do that!!  I think it is safe to say that we are now motivated to be extra vigilant when checking the tightness of the ties that hold her trach in place.  I know I checked on it about 5,899,216 times today👀

5/13/2021

Look who is standing with support!

She seemed to enjoy it!  The tech was the first person to be in our home besides our family in about a year!  You could tell that she knew he was new.  She kept following him with her eyes :)

5/4/2021

 Annelise read our Star Wars book with her daddy for May the 4th today!  

I put her in her Yoda shirt a few days ago... so it's still in the laundry😆 here is a photo from that day🥰

April updates!

 I missed posting my updates in April to the blog! Here to catch up:

As far as updates to her health, it is amazing that I don't have too much to report.

The hearing aid that we are trying out does not seem to be working at all. Annelise isn't turning her head, or making any facial expressions that would make us think she can hear.

Big praise the Lord for her calm demeanor and easygoing personality. She is a bucket of sunshine for so much of the day! Unless her tummy is giving her problems.  That still happens quite frequently, but she is a trooper and smiles are never far away.  God has blessed us big time with her health.

Here are some photos of how she is growing!

Up to 74cm long, and 17.5 lbs!