Annelise Faith

Annelise Faith

Wednesday, October 16, 2019

10/15 - Tuesday at home

Annelise had her chest xray on Monday.  Life outpatient isn't nearly as convenient for test results, but I suppose waiting longer is a small price to pay for being able to live at home! No news is good news tomorrow, since the doctor will be out of the office, he will only ask his fellow docs to call me if there is a problem with the xray results.  Annelise seems to be breathing easy, I don't anticipate that the chlothorax is still hanging around... but it will be really nice to get some confirmation that we are done with it!
It has been more challenging than I thought it would be to get used to nurses in our home.  I know, weird thing for me to have a problem with right?  For 8 years I was the helper entering into people's homes to work with their kids.  I knew it was a vulnerable thing to have someone else caring for your baby, no matter how old that baby is... but I didn't think it would  hit my introvert button this badly!  It's probably another one of those things that I'll get more used to with time.
We are scheduling follow up appointments with all of her specialists.  She's not as portable as a typical baby. We always have to have a person sitting in the seat next to her in the car.  Without a nurse in the day, that is challenging.  Our night nurse has volunteered to change her schedule a bit to accommodate some of our daytime doctor appts.  I really appreciate her❤️
We are just hanging around the house when we aren't at appointments, getting used to having Kevin gone at work again, boo....but also really great that he has the job that he does! We are also getting used to her medicine schedule, caring for her breathing and feeding needs, and of course trying to find cuddling time.  I get the thought in my head every day that I am not enough for the circumstances that God has given us.  But every day I'm reminded that we are part of a loving church community, and have extended friends and family that are supporting us and Annelise, and that I have seen God move in this little girl's life, we aren't alone in this by any means. In the daily challenges. I heard this song on the radio when I was driving to get my flu shot this weekend.  I love knowing that Annelise's story is the story of how God is working in her life, and also how the Lord is pursuing me through her life as well. 
https://youtu.be/in1uxSpvsw0






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