1/25 - update on the past few days

I've been sleeping instead of daily updating, but want to share some of the cute Annelise pictures with you all from the past couple days!  We had another OT session, and Annelise's goals are holding onto little toys in her hand for as long as possible, and practicing sitting up and getting control of that noggin and neck.  The OT was impressed with her eye contact.  She loves looking at faces😍 and lights.
This girl picked up drooling as a skill this week.  We are so blessed to get hand me downs from our friends right when we need them.  We have plenty of adorable bibs from our big girl twinsie friends who don't need them anymore!
Our daytime nurse will be out for the next 6 weeks.  We are hopefully getting a long term replacement... but time will tell if that will pan out.  In the meantime, Annelise has a wonderful village of people willing to sacrifice their time to get her to her appointments.  It is humbling and beautiful how our church family and friends love and show up for our girl🥰
She is thriving at home.  Her health is so fragile in nature, that I know this won't be how it is for all time, but we are determined to get as much joy as possible from these times of wellness.  God has gifted us big time with His baby Annelise.