First off, praise the Lord for the amazing time we have had with Annelise as she grows at home. She wakes up with a smile, even at 3am!🤦♀️😆 It's my dream come true for her to have the joy that she has.
Asking for provision for ventilator circuits. There is a shortage nationwide due to more people using ventilators while battling the covid 19 virus. We got half of our monthly supply, which means I either need to wash the disposable item that wasn't made to be washed, or leave it for longer than recommended. It is the tubing that carries humidified air from Annelise's ventilator, directly to her lungs, so to keep that fresh and bacterial free is essential. Asking the Lord to keep the bacteria bugs out of Annelise's lungs.
I'd like to also ask for some prayer regarding my quest (yes, since October I have been trying to get a heated humidification system for my babe, so the mission has been upgraded to quest status) for a piece of equipment that will help Annelise now, and in the future when we are ready to wean her from the ventilator at night. The equipment is coded in a way that takes an extra step to be approved by insurance.... and getting our medical equipment supplier to take the next step has been a gigantic challenge. Praying and asking for wisdom regarding how to get the "myAirvo2" or what in the world else we can use in its place!
Thank you family and friends!❤❤❤
No comments:
Post a Comment