We didn't get the results that we were hoping for today. Annelise's sedated ABR hearing test didn't show much response, the hearing loss is so significant, especially in her left ear, that the ENT was wondering if hearing aids will even help at all. She is having one of their people from the front desk work with our insurance to see if we can use their audiologist, or if we need to go somewhere else.
If hearing aids don't work, a cochlear implant could be a next step to try. As of now though, we know she definitely can't hear us, and there is a real possibility that we won't be able to help her hear.
I'm mourning the ways that I know how to work with little kids, that I will never be able to use if Annelise can't hear me. It is a real loss. But, my incredible husband reminded me that I can learn new ways to teach her things.
I'm grateful that Kevin is still working from home, and could be here to process our responses to the official news that Annelise can't hear. I'm sure just like everything else, it will be harder on some days and seem like no biggie on other days.
I love that Annelise doesn't seem to be bothered by not hearing. She has been extra smiley this past week. We are sad because we know what she is missing out on as far as joy from music and communication, but Annelise doesn't know she is missing anything.
Despite the morning bummer, we had a great afternoon session of physical therapy via Zoom. We tried some new exercises, and helped her roll from her side to her tummy. She wasn't the greatest fan, but she's really tolerant of our crazy ideas, and I think she enjoys moving in new ways too. The PT suggested a change in where Annelise's arms were positioned, and it resulted in Annelise popping her head up higher than I have ever seen her do before! She is still wobbly, but it's so fun to see her getting stronger!
I will still be praying that she grows into some hearing abilities! I'll keep you posted about it after we meet with the audiologist! It encourages me that multiple friends reminded me on yesterday's good news post that God is good all the time. He's good today and right there with us as we figure out the best ways to connect with Annelise without sound, while waiting to find out if she might be able to hear us in the future. Doesn't this post sound like I'm being patient? Inside I want to know what's going to happen noooooow! Luckily, we have lots of PT exercises to keep us busy while we wait❤
No comments:
Post a Comment