1/9/2021

 It has been quite the week!  We had 3 appointments and an ultrasound this week. 

Urology and Nephrology appointments went well.  Our urologist is happy with the routine we have in place, and says unless something comes up, we can plan to follow up in a year!

Nephrologist said according to her lab results, her kidneys (or rather, her one big kidney in the shape of a horseshoe where the two kidneys are connected together) are working great! 

The routine abdominal ultrasound that we get quarterly to check for any signs of liver cancer came back clear!  But in that ultrasound, they noted an incidental finding of a mild pleural effusion, which meant she had fluid around her right lung.😳  A big thank you to God for blessings like us already having a pulmonologist appointment scheduled for the next day!  We changed that zoom appointment to an in-person visit, and brought her in so her doctor could check her out.  I was so relieved when she said that Annelise's lungs sounded super clear, and that she would have no reason to suspect fluid around her lungs from looking and listening to her.  We got a chest ultrasound ordered, just to make sure.  Waiting for the results, but Annelise continues to smile and seem happy and content, so I'm hopeful that the ultrasound will show the fluid is gone.

My amazing husband had a birthday this week!  But being as adaptable as we are... we adapted the calendar to extend the celebration to this weekend... because nobody has time to make and enjoy a cake when the baby has fluid around their lung and Dr. Google says it's probably infection or heart failure... this is why I say thank you Jesus that we didn't even have to wait a whole day to get her seen❤

Here are some photos and videos of what miss Annelise Faith has been up to.  She is getting so good at grabbing things.  Her favorite things to hold are her tubes and wires🤪

She is holding onto toys for more than a few seconds now🥰