Annelise Faith

Annelise Faith

Thursday, February 11, 2021

2/10/2021

 Happy 20 months to our amazing Annelise Faith!  She has finally bumped up to size 3 diapers, is doing well with blended food through her g-tube during the day with some formula overnight, and is actually NOT allergic to avocados!!🥑🥳🤩

We realized that she had grown intolerant over time of her prophylactic antibiotic that she takes to protect her kidney.  It happened gradually, but some of the symptoms started right when we introduced avocado.... so we thought that was the culprit.  Tried them again and she is good!  We tried  a different med too so she is good all around now❤

The next big thing will be for her to get measured for a stander.  It is a piece of equipment that will support her and  allow her to practice being upright and bear weight on her little legs.

Kevin and I were able to get the covid vaccine, so we are really thankful for that added layer of protection! Just the first dose so far.

Enjoy some photos of the last few days. 

I'll also leave this link to my newest favorite song that prompts me to recognize that nothing is too hard for the Lord!🥰

Fires YouTube link












Saturday, February 6, 2021

2/5/2020

 Our little heart warrior, sporting her CHD awareness shirt❤









Monday, February 1, 2021

1/31/2021

 The first photo is a surprise we got in the mail from the Child Life department of our Children's hospital ❤  When Annelise was going through her 2-month long casting to straighten out her clubfeet, I showed the weekly cast decorations to staff each week that were there to support us while she got her new casts on, and was asked if I would share them via email, so I did, and this is what we got in return! 

Child Life is such a unique profession.  They are there to help some kids learn about their diagnosis and procedures, and I am sure each family has their own unique needs and ways they can use support.  Child life has been everything from battery-provider for our twinkle lights and Christmas tree in the PICU...to birthday balloons and gift bag giver for me while Annelise was inpatient... to the cutest personalized gifts from the gals at the Ortho clinic❤ They all do an amazing job!  A big Praise God for the great providers that have joined our adventure🥰