Annelise is wearing her light blue and Trisomy Tribe t-shirt for Trisomy 18 awareness day!
Because of other families spreading awareness of hope beyond the bleak statistics, Kevin and I searched for a hospital that wouldn't deny Annelise a chance at the heart repair that would be be standard care for a baby born without an extra 18th chromosome.
Glory to God for leading us to Omaha, NE, and the medical professionals there who treated Annelise as the whole and complete person that she is. We will keep spreading awareness so more families will be able to stay where they are for heart repair. Omaha is the best.... but it snows there! Come on California!
(It is totally possible.... in the time since we returned from Omaha, a CT surgeon at UCLA has stepped up and performed heart repair for our T18 brothers and sisters.... there was also a family in Davis who successfully got the hospital to change their stance on heart repair for babies with T18. These parents are heroes! Pass it on, keep it up!)š„°
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