We're having a bit of a struggle today. I'm hoping a good night's rest will bring calm to Annelise's body. We've been on the hunt for the culprit behind the elevated heartrate that has stuck around, off and on since we went to the ER last month! Bloodwork finally showed that our sweet kid is anemic, and her thyroid stimulating hormone is way high.... both things that have been well within normal limits for much of her life, so we have high hopes that Annelise can return to her baseline and all the smiles will return too! She has been quite a bit more serious lately. I wouldn't mind a bit if she had a serious personality.... but she's known to be a cheeseball, so her lack of smile makes me think things don't feel quite right for her❤
That's not even the big issue that overtook Monday though. We started Annelise on an iron supplement 2 days ago, and last night she started to get a red rash around her neck. This morning there have been big splotches that disappear and then show up on other parts of her body, all day long. She seems to be having an allergic reaction to the iron supplement! She was having a hard time keeping down any food or water, puke galore, so we were about to pack up and head to the ER.... when we decided to wait a little bit and see what the next round of benedryl would do... praise God she was able to keep little amounts of pedialyte down, and it continued for the rest of the night, so she is well hydrated! Thank you Jesus! Also wonderful news that she has been breathing just fine, but she has been so uncomfortable and in a benedryl fog all day. I just want her to feel better!
Our weekend was so fun at home together, it's weird to think that was just the day before all this started! We'll be looking to add more iron rich food to her diet and foods that help the body absorb iron too. This is where having a gtube really makes life easier. I fed her water slowly all day while she slept. Meds went in without her tasting them, and it doesn't matter if the iron rich food tastes good at all, because it will just be blended up and put through her tube! I'm extra thankful for the people who worked
hard to I vent benedryl and the gtube today💗
No comments:
Post a Comment