Annelise is holding day 7 of her advent blocks in this photo. She hasn't been feeling her very best today. Shortly after taking the picture, she puked for the 3rd time. It has been a long day! We're going to swap out her last meal for some Pedialyte instead, and hopefully tomorrow will be better for her tummy.
The morning started great at her orthopedic surgeon's office for a routine check-in. We're to keep doing what we are doing, and we'll get x-rays to have a look at her scoliosis progression at the next visit in 3months.
We got to see some awesome nurses and child life specialists who dote on and adore Annelise. The music therapist that I first met while pregnant with Annelise was also there. I don't see all of these folks often, but it isn't easy to forget the sweet music therapist who took a recording of Annelise's heart beat in utero, and made a cd for us with it, as well as a song that is meaningful to us(https://youtu.be/50ygAc2qP5A).. And put the heartbeat in a stuffed bear that we took with us to Omaha and now sits on the shelf in Annelise's room. All of these things were done just in case we never got to meet her. So it is extra special to see her and show her how Annelise is growing! We're so lucky for today🥰🙌
December 9th:
The last couple of days have been too exciting. We aren't strangers to pukes at this house, but some extra unusual symptoms that don't usually show up have us wondering if there is a new form of seizure happening... If Annelise's shunt really now is not working and her brain has too much pressure... Or maybe, and this is my preferred option... maybe Annelise's GI motility went on vacation and it is instigating all of these other issues. Time will tell, but when one possible option is that her shunt isn't working, that takes top priority. If the ER wasn't crowded with all the various respiratory viruses, we would probably just have taken her in to confirm that it isn't the shunt. Our stuff is packed by the front door just in case, but happily, after I put her in her festive outfit this evening and we read our advent story for today, she perked up and had some symptom free awake time. The sleepiness of the day was concerning, so it was sooooo nice to see her eyes open and happy for a bit! I'm sure after reading about king Saul, and being reminded that God is with us to fight our battles with us, helped me be calmer for her too.
Yesterday's advent blocks photo shoot got puked on.😬 It happens. So I took a photo of the cleaned up babe during the little bit of time she slept instead 😊 Looking forward to more health for Annelise tomorrow, her half-birthday!🎉♥️
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