Today is not just any Thursday (it's Thursday, right?😆) We have been back in California for 1 year! It's the last Thursday with casts for Annelise! Also the last day of this round of antibiotics that adds 45 minutes to her breathing treatment, twice a day!
We were in the air by this time last year. What a big day, I can still remember the feeling of leaving Annelise's safe place to go into the unknooooown🎵❄😁
Difficult, but necessary steps, one at a time.
We're still taking those steps. Next Friday, Annelise will have a sedated procedure, that will clean her teeny tiny ear canals, put tubes in, if they can fit, have a hearing test, scope her airway to see if she can go up a size in her trach, which would mean other options for humidification would be on the table. 👍
We will also try to get blood drawn for labs, and a culture of what her trachea bacteria looks like now that we are on our last day of antibiotics looks like. We try to add as much to sedated procedures as we can, to make it more worth it, since sedation is never the first choice.
It will be hard to hand my healthy baby over for a procedure to capable strangers, but we feel confident that this next step is difficult but necessary.
I've done my best to recognize this baby belongs to God, before she belongs to me, and that her whole self is in His loving hands, so while I leave it up to God's plan for her hearing.... I'm still going to be bringing my request to His feet, and ask you to please do the same.... to let her hear. That would be so awesome. She already responds super great to visual stimuli... but no loud noises.
I felt like she could hear in the NICU days... so in the back of my mind I wonder if cleaning out her little canals will be helpful just by itself. Another "wait and see". And pray❤🥰
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