Until it was actually time to sleep... then she was ready to party!
The last day of casting for Annelise's formerly clubbed feet was today! She has made amazing progress. These casts will stay on for 3 weeks, and then she will need to be in her "Ponseti shoes" all day, every day for 3 months. That will be a little intense, since there is a metal bar that goes between the two shoes. I see a snowboarding outfit in her future this Halloween.
She has started an antibiotic through her nebulizer to keep away the effects of the bacteria in her trachea that kept us inpatient for part 2 of the 3 part, month long hospital stay last December. (The term they use is "colonized bacteria". It's there, but hasn't bothered her since December.... but rather than wait for it to get ugly.... which it usually takes the opportunity to do when she gets sick with something else....we have been prescribed a month on, then a month off, rotating schedule of these antibiotics) She has been extra "junky" and having a lot to cough since starting the med. Part of me is glad for her to get practice coughing. A strong cough will help her protect her airway. Another part of me is nervous to sleep, thinking she might need my help in the night. She is 2 feet away from me, and has multiple monitors on all night. So we are praying for her continued health and safety, and will talk to our doc about it too, to see what they say.
No comments:
Post a Comment