11pm update:
Annelise is getting a blood transfusion as I type this. She decided to go to sleep, so she will get a few hours until they take her down for the CT scan around 2am. They could have done it sooner, but would have needed to give her another IV for the contrast that they use because it has to stay separate from the blood transfusion. I asked to put it off and wait for the blood to be finished so we could just use the one IV that we worked so hard for! Worth the wait in my book!
Kevin came and brought me dinner and the iced coffee that I had forgotten to bring with me♥️ I don't know why they don't have an actual Starbucks in this hospital. This way Kevin got to save the day🥰💖 He'll come back tomorrow and be the awake one so I can nap then.
8:30: we made it to the PICU! Still no CT scan done. That will be next. She is all smiles again. My heart!♥️🥰♥️
6:15 update:
Wow! The team was able to come right away and got the IV! Praise the Lord!
We met with the GI, and they are pretty sure she must be bleeding somewhere. There's just too big a drop in hemoglobin for anything else to make sense. So the hope is that this CT scan gives answers, but if not, then the sedated scope will probably be the next plan.
Annelise is unimpressed with the new inability to chew on her left fingers, since her left hand is where they got the IV access. She found her right hand to be an acceptable second choice.
Thank you so much for your prayers and wonderful messages. It really does make a difference to have so much support and love around us!🥰 I'll keep you posted!
Update at 5:20:
The nurse tried her best and got enough blood for the tests they need to run, but didn't get the IV access they needed..... I declined to have another person try. Hard choice because there's always a possibility that she could have gotten it! But I have to go with the odds and ask for the team that has the ultrasound machine. Problem with that is that they are in high demand, so they will come "as soon as they can".... Meanwhile the plan is to do a CT scan with contrast through her gtube, and now we wait.
The van is packed and we are ready to go to the ER....again😭
Annelise's elevated heart rate came back. We tried to avoid the ER by getting a CBC blood test and hoping it would come back fine and normal.... But her hemoglobin number tanked to a 6.3. 10.2 is the bottom of normal, and it has been less than 3 weeks since hers was 10..... So now the gradual decline into anemia has become acute, so the need for more answers becomes more important, and so now tools like sedated scopes to go looking for possible sources of a GI bleed become more appropriate. I hate all of it, but if none of these incredible assessment tools existed, then I would be praying for their invention. Now we are just praying to get through it as easily and as comfortably as possible for Annelise.
Will you please thank God with us for her smiles, and ask for easy pokes and comfort for her body so the smiles aren't interrupted for long♥️
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