Annelise just went back for her scopes! We met the doctor in the hallway on her way. She is busy today. I told her she was being prayed for and to have a great day at work!☺️
She's out and back in her room! Kevin and I spoke with the GI specialist who did the procedure, and when we got back to the room, Annelise was already tucked in. She was wide eyed when we walked in, but is asleep now. She looks comfy.
There were a few things that can improve. Nothing really obviously bleeding to point to as an anemia culprit. She has been on medication to improve her tummy and treat any ulcers for the past month since her January hospital admission and transfusion... So perhaps it was worse before, leading to the quick decline of hemoglobin.
Biopsies were taken, so we wait for them to come back and then make a plan that I think sounds like it will just be more of the same as we were doing. Perhaps with an added med to help her move food out of her stomach faster. Then over time, we'll know if that was the best plan, or if we should do something else. More waiting, trial and possibly error, but also just as much possibility of trial and win too!
The medicine that heals her stomach is one that can't be taken with food, so her tummy needs to be empty before she take it, and she needs it 4 times per day. This has been the biggest challenge over this past month because Annelise digests so slowly, that giving her long pauses between meals has meant she doesn't meet her daily calorie goal. We just run out of time in the day. We will talk to a dietician tomorrow though that we worked with when Annelise was a bald little baby. I'm sure she will be able to brainstorm with us a good schedule for meds and her nutrition 🙏💡🧠
Thank you to all friends and family who are praying, or messaged, whether tangible or emotional help, we feel supported and cared for. That truly does make these days easier.
We have our girl back with us.
And there were so many distractions between me starting this update and now.... That she is awake and smiling again! I'm so excited to share these kinds of photos! Lord the glory is yours, this girl is so tough and courageous!💖💖💖
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