Annelise is back in her PICU room, and resting. 🥳 Her neurosurgeon said the surgery went well. He had some reason for not wanting to shave her whole head...which actually came as a welcome surprise, since I began to regret the decision to shave all her hair the more I considered it! So she still has most of her fuzzy hair🥰
The good news is that it was a successful fix. The potentially not so great news is that what the dr. found was that choroid plexus (where CSF is made....apparently....I'm just learning this too) was blocking the shunt and not letting it do its job to drain the ventricles. The surgeon said that this problem can be recurring, with high probability of it happening again😞
He moved the shunt away from the choroid plexus a tiny bit, so hopefully that will help to prevent it from getting in the way again.
Here's an article that talks about our problem in case you are interested.
Thank you Jesus for bringing our powerful little princess through the surgery and back to her room with her eyes wide open! We made sure this time that she had pain meds lined up already, so we have stayed ahead of her pain, and hope that we can now ALL get some rest!
We appreciate your prayers with all of our hearts, and knowing you are lifting Annelise in prayer gives us so much joy to see her so well loved.
https://www.hydroassoc.org/from-patient-to-progress-new-insights-into-preventing-shunt-blockages/
12 noon:
Wow! Things are moving so fast! They just took her back for surgery now! She was an "add on" and they found a time to add her on early! We signed all the releases once again stating that we know the risks, have been advised of all the possible things that can go wrong.... but again, not doing anything would be far worse, so it's an easy decision in that regard.
It does not come naturally to live our faith with an open hand, offering up the things and people that God has given to us, recognizing that they are not ours, but His to give and take.
It's a choice to recognize that our lives are the Lords and not ours. It seems to take away all of my power, and it can be terrifying to recognize that I am so out of control. But to think about who does have the control, that's where the peace that surpasses understanding comes to life. The one who made me and Kevin. The one who made every part of Annelise, and who knows and loves every inch of her, He is the one in control, and He loves us more than we can even imagine. More than we even have the capacity to love. We trust Him with our future and with our daughter, because she is His baby girl first.
Her stuffed animal friends are waiting to see her in an hour or two!
P.S. Bald baby will make her return. We asked for her head to be shaved again so we can start over with her hair the same length so it can grow and grow with no more surgeries on her head!!
No comments:
Post a Comment