The extubation went well! We were prepared for her heart rate to go down, but it didn’t! Her oxygen saturation levels look good on the monitor... next step is to see what’s going on with her inside. They will test her blood to check the oxygen and carbon dioxide levels there, before deciding to change any settings, or to determine if it isn’t working for her. Praise the Lord that we can trust Him with our salvation, as well as our today.😍💖💖💖🥰
We’re at her bedside just staring at her face now😍
New update! She seems to be tolerating her nasal cannula pretty well. She has had a couple moments where her heart rate dropped significantly, but it came up on its own again. They are thinking of giving her caffeine to help with that if it keeps happening, but they want to watch her for now to see if she gets it figured out by herself.
The blood gas test came back with good results. They are going to check the O2 and CO2 again in the morning, unless she looks distressed at some point today. I’m going to Starbucks to get our nurse a celebratory nitro cold brew, her favorite... and I’m going to get myself the first iced coffee I’ve had in many months, since caffeine is now possibly good for my baby by some miracle😉
Kevin is giving her some good cuddle time, and I just love their faces! God is so good all the time, and I’m so especially grateful for these moments!😍G
The nighttime update from Omaha on extubation day:
Annelise had a good afternoon, had a nice relaxing time cuddling with Dad. Was getting agitated when it was Mom’s turn to hold her, and for awhile in the evening, was crying silently and really difficult to comfort. We haven’t heard her cry yet, but there’s no reason right now to think that we won’t as her trachea heals from the irritation of the breathing tube.
She was getting tired from all the crying, but was having a hard time settling to sleep. Our nurse, one of my favorites, stayed with her and tried so many things to see if she could get her to settle down. I then changed from being teary eyed because of the stress of seeing Annelise uncomfortable, to being teary also because it’s so nice to see the nurses love on her like that and really work to make her as comfy as they can. Not to mention that I really haven’t had time to process how it feels to see this incredible babe’s whole face without a breathing tube, and to not have to be constantly vigilant to not disrupt the tube. I’ve had ALL of the feelings today.
😬😳😍🤩🥳🥰😥😍🥺😫☺️😃😍😭😴☹️
It has been a stressful evening, with Annelise feeling sad, and her oxygen saturation levels and heart rate dipping low enough to set the alarms on her monitors off over and over again. They decided to go ahead and give her a dose of caffeine, to try and keep her respiration rate up, so her oxygen levels can stay up too. The night nurse also got her a dose of Tylenol, which seemed to help settle her down a bit. The alarms are still going off all the time though, and while I’m super confident in the nursing staff’s response times and skills to keep her safe... I’m also concerned about what the doctors will say tomorrow... and if they’ll think extubation is working for Annelise, or if they’ll call this a failed attempt, and put her back on the ventilator with the breathing tube. I’m sure there would be other things to try first before just giving up... but we’re praying that her oxygen and carbon dioxide blood gas levels still look good tomorrow, even after all of this craziness tonight. Also just praying for little miss to be comforted and get some good rest, with lots of deep breaths, and for the obnoxious junk in her lungs to just go away.
Those are all of the things concerning us tonight... but we also need to take a minute to recognize what an amazing day today has been too! To see her precious face without all that tape all over it, to be able to pick her up ourselves without 3 other people helping because of all of the potentially life threatening hazards surrounding her breathing tube, seeing the success she was having for a long while this afternoon! All make for an amazing day overall.
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