Evening update:
Annelise slept through the whole day! Not sure if this means she’ll be wide awake at some point in the middle of the night, but regardless, we are so thankful for her time of restful, recharging sleep! She would stir a bit when she got her diaper changed, and then go right back to snoozing away. Kevin stayed with her today at the hospital while I went to the Rainbow House for not one, but two naps! I’m staying overnight again tonight with Annelise, because I just feel better knowing that one of us is next to her.❤️
We got to watch some fireworks tonight from the window of a vacant NICU room. The finale was bigger than Disney fireworks!
Today I’m grateful for rest, and as always, the many people who are surrounding us with encouragement, prayer, generosity of all kinds, and just their presence or letting us know they are thinking of us. It has all helped to hold our hearts together, and we’re thankful for our people.💖💖💖
Tomorrow morning they will check Annelise’s blood gas again. We’re praying that her CO2 levels would be where they are supposed to be, and that her lungs can breathe deep breaths on their own. Also praying for God’s will to be done, and for Him to ultimately get the glory for her sweet life!
Afternoon update:
Thank you so much everyone! They gave her the all clear for today at least! They’ll check her again tomorrow. She’s resting now after her long night. Praise the Lord!🥰
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Morning Update:
We just came from rounds with the doctors in the NICU where they talked about their concerns for Annelise’s breathing.
Her blood gas came back with a high carbon dioxide level early this morning. They checked it again later, and she had dipped back down to an acceptable level. Basically, she has one more chance to have a “good gas” level. They will draw her blood to check it at noon, and if it’s an ok level, she can stay extubated... but if it’s high again, they’ll want to put the breathing tube back in!
She’s resting comfortably right now, so we’re hopeful that she will have good readings, but just having that breathing tube looming over our heads is uncomfortable for me.
If she were to go back on the breathing tube, it would be so that she can grow before either trying to extubate again, or getting a tracheostomy. She’s too little for a tracheostomy now, so the options are breathing tube or cpap nasal cannula. It looks like she’s doing fine. I don’t want her little body to be poisoned with CO2, and I also don’t want her to have to go through being reintubated!!
I’m exhausted from not sleeping, and stressed out at the idea of putting the tube back in... so I’m going to ask God to take this burden from me. It’s usually my job to give my problems to Him, but it’s too heavy and I’m too tired, however I know they belong with Him and not with me. Asking for prayer from anyone who sees this now please!
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