We are moving in the right direction! The update for today is that the doctors changed Annelise’s ventilator settings a lot this morning, so if she does well with these new settings, then that will get us much closer to talking about extubation, and getting that breathing tube outta there! It will be a planned extubation, unlike when it accidentally became dislodged the other night and caused so many scary problems... so the hope is that since everyone will be prepared... if she does end up needing the breathing tube, hopefully it won’t be as dramatic to reintubate if needed. I want to be prepared for multiple scenarios, and I know having a tracheostomy is fairly common among babies who have Trisomy 18, so it’s a possible outcome. A trach would not be the end of the world. It would mean breath for her lungs, which lends itself very well to life with us! While we’re on this side of things though, our heart’s desire and constant prayer is for her to safely be extubated, and to be able to breathe without the breathing tube, or much, if any, assistance!
We’re also continuing to pray for her little brain ventricles to stay little, and for the hydrocephalus to stay away, and for seizures to stay away! These requests of course come after the shouts of praise from our grateful hearts for all of the amazing ways Annelise is being healed already! We’re ecstatic watching her start to stretch and yawn, learning that she likes to sleep on her left side best, watching her tuck her little hands under her chin while she sleeps peacefully, and seeing her bright eyes open while she’s awake.
It will be my turn to hold her later today!💖💕
No comments:
Post a Comment