June 30th - Cough it up!

The morning Omaha update for the last day of June is that she is doing well on the cpap for the most part... but she has phlegm and junk that runs down her throat and blocks her airway!  She made the alarms go off over and over last night, and had to be suctioned by a little sucker that reminds me of the tool at the dentist office that sucks out your spit.  It seems to be worse after she gets her “cares” done... the nurse checks her out and we take her temp and change her diaper... because she’s on her back for this time.  We’re going to try and change her diaper next time while she’s on her side.  Sorry to talk so extensively about throat secretions... but this is our life now!
We’re praising the Lord for her life!  And asking Him to please take away the extra junk in her throat, or give her super skills to just cough or swallow so her airway doesn’t get stuck.❤️
So excited to see some cousins today!  And still getting used to having so many different feelings all at the same time.  All of the feelings!😴

Evening update:
We’re still dealing with sneaky spit over here that messes with Annelise’s breathing.  Today we’ve gotten a lot of practice giving our fears to God faster in response to the alarms dinging about low oxygen saturation.  Any time now, they are going to draw a blood gas, to check her CO2 levels, since she’s had so many episodes of low o2 saturation today.  Praying that her c02 is within acceptable limits... and overall, praying about loogies!  Asking that they would just go away and leave the sweet baby alone so she can breathe easy!
It has been a tiring day.  We used up a lot of emotional energy on all the alarms.  I’m so grateful for the NICU nurses who take great care of Annelise, and have great communication regarding the best ways to keep her comfortable and breathing the best.  Currently, little miss is sleeping soundly... the nurse and nurse practitioner MacGyvered a tiny chin strap for her head so she would have a little help keeping her mouth closed, because she was losing a lot of pressure from the cpap out of her mouth.  It looks like tiny head gear for a retainer to me!
The celebrations of today are for another overall good day with our amazing tiny fighter!💖
We also got to hang out with family who came to town to visit us😁!
I spent some time crafting a colorful name tag for Annelise’s doorway to her room😊

This week coming up, Kevin is looking into working remotely from the Rainbow House, so that he can save up some paternity leave hours.  Hopefully that all works out nicely!  Although I will miss him at the hospital all day, able to do awesome things any time like reading a story to his daughter 🥰.