Sunday, June 23rd

Post from Facebook:


We’re holding on to this day and all of the little giant victories that Annelise experienced today. 😊 We asked for prayer for comfort for Annelise while she had her breathing tube tape and placement changed, as well as the dressing changed for a picc line in her leg.  I am so thankful for you, who jumped on board and asked the Lord to help Annelise feel His calm.  We felt it too.  Even though I know without asking, God is with us... my prayer was that Annelise, Kevin, and I would all feel His presence and peace.  Quite often, my brain and the anxieties that fill it, get in the way of me noticing and accessing that peace that comes from knowing and loving Jesus.  Kevin and I were in the room while her professional people were caring for her, and the nurses commented more than once about how well Annelise was handling it all!🤩  Her heart rate showed that she wasn’t overly stressed out by the events, and she went right back to sleep after they were done.  Compared to the last time her tape was changed on her breathing tube on Thursday, today was an absolute snooze fest!  She didn’t fight having the tube in her throat, and her calm carried over into our calm... and it has just been the best day.🥰 She continues to be weaned little by little to lesser oxygen needs on her ventilator.  She didn’t gain any weight today, but she didn’t lose any either, and her tummy doesn’t seem to be upset by the increase in food. 🥳🤩😎.
The ways to pray that I can see in the near future, is for her head circumference to not grow, and because God can handle miracles, for her to not need a shunt placed by the neurosurgeon. Praying for appropriate growth in the rest of her body, and to safely wean off of the ventilator entirely!
Praying also for her heart surgeon, Dr. Hammel. He is doing SO much good here.  Praying that he can have some margin in his life to enjoy his home and family, as well as his work, so he can keep on changing the way that babies with Trisomies are treated, and provide life changing operations for families from all over the US! 💪❤️

https://www.childrensomaha.org/provider/james-m-hammel-m-d/