I went home to the Rainbow House to sleep last night! That was a big step for me, since it has been so hard for me to put distance between myself and Annelise when Kevin is also not there by her bedside. Only one parent is allowed to stay overnight at a time, and I can sleep anywhere, so the reclining chair has been my bed since her heart surgery. I knew it was important for me to get away and have a real sleep... but she kept having new-to-us nurses... and if we’re gone all night, I just want to know that the nurse knows her, especially while she has been having a hard time breathing easily. So when Annelise had the same amazing nurse 2 nights in a row, she had a great comfy day yesterday that included more than 5 hours out of her isolette, snuggling with Kevin or I... we knew the nurse that would be coming back the next day, and loved her... we left! I called a couple times to check in, and got the final report today that Annelise had an amaaazing night. No alarms at all! 🥰🥳😃
The plan continues to be “watch and grow”. She had another gain of 30grams (about an ounce) at last night’s weight check!
Our visitor train is slowing down now, Kevin is working remotely from the hospital room, and I don’t exactly even know what I do all day... but somehow I am always talking to someone or doing something and still have time to forget a bunch of stuff too! Time and tasks are weird in the NICU.
Praying that Annelise continues this growth trend, praying that her airway grows bigger and stronger along with her, that her heart rhythms even out, her brain continues to be seizure free, and that her ventricles would find a way to drain CSF without needing a shunt. Plus any other organ in her body that you want to pray for! 😊
Annelise got an bath (she slept through this one, yay! Because she hated the last one!)
And got to wear her first outfit! 🥰🥰🥰🥰
I remember wondering when ordering the NICU preemie clothes online, if I would ever get to see her wear them. We just weren’t sure if she’d survive the birth. The feeling of joy is overwhelming, seeing her look so adorable in her outfit, on her 4-week-old birthday!🎂
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