7/20 - Expecting New Mercies Today

Funny how little things can make a difference.  Like this morning, I was trying to start the day with as much joy as possible... and as I’m leaving Starbucks, the barista tells me “have a nice day Janet” (shoutout to cousin Janet Carmody ! Think of you always when this happens... so that’s a LOT! 😊) Suddenly this crazy new out of comfort zone life had a little bit of “normal” to it, and that which usually makes me roll my eyes (why would my parents use all those extra letters in my name if my name was supposed to be pronounced like Janet? Come on people!), gave me some comfort of home.
They increased some ventilator settings for Annelise last night when they did a blood gas test and her CO2 levels were much higher than is safe for her.  The follow up blood gas test was so much better... but I’m not sure it will be enough to keep them from deciding to intubate her today... there’s a new neonatologist on duty this weekend... so I don’t know what he’ll decide.  I don’t think we even know what we’re hoping will happen at this point.  It’s so hard to see her hating the breathing tube down her throat, but when she gets upset on her current settings and struggles to get a good breath... that can smash a person’s heart too.
While driving to the hospital from Starbucks this morning... the electronic billboard outside of Target reads “discover God’s plan”.... we’re trying, billboard!  We’re expecting His mercies to be evident today, we’re trusting He will orchestrate the best plan for Annelise, and we’re so beyond grateful for the gift of today with this little loviebug!💕🌷💖
She’s sleeping comfortably right now, we’re waiting to find out what her team has to say at rounds today, and we’re expecting a big day of visiting!  Because Annelise’s mom can’t remember what’s happening when... so she tells Annelise’s Buchanan grandparents to come visit on the same weekend that she has made plans with Annelise’s aunt Melanie and uncle Eric!  We’re also thankful for flexible family that goes with the flow and loves her so much to make the long trip❤️🥰