I’m back at the Rainbow House tonight too... working on catching up on sleep. Miss Annelise had a rough morning, but her nurse helped her out and they changed some vent settings for her cpap nasal cannula, so she was breathing okay and had a 4 hour nap mid-afternoon! We had some time to hang out with each other in the big blue chair again today, and she was cute and awake for awhile after her nap. She didn’t cry very much, which makes it a better day for us too! Kevin read to her after dinner, and when she was weighed, she gained some weight to put her at 4.3lbs! She’s so close to 2kg, which is when the ENT team will deem her big enough for them to get involved and do something about her airway. A tracheostomy is a possibility, but we don’t have all of the info yet, and we have one surgery on the books officially already... so we’ll focus on that one shunt surgery this Monday first.
We are happy and beyond grateful that our baby friend Sarah Catherine is doing well after her open heart surgery and being weaned from her vent already today!!🥳🎉 I’ll put a link to her mama’s blog in the comments for a way to check out her story❤️. The dream is for them both to get chubby and healthy and have a photo shoot together someday😍😍.
Goodnight friends!❤️
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