Day 3 post trach

There's a cute little baby that just turned 7-weeks-old today!! 🥳 The days keep blowing by. We're just two days away from the planned first trach change on Wednesday morning.  After the first trach change, the ENT specialist will let us know if we can start weaning Annelise from the meds that are keeping her sedated now.  Today the medical puzzle included trying to keep Annelise's blood pressure from going too low as a response to the sedation meds. They did eventually figure it out! 
They took her food away again ☹.  She had more output from her chest tube... which means she needs more time to heal before they resume feeds again.  As of now... they are considering this weekend to start her back on  breastmilk instead of just nutrients delivered through an iv.  I'm hoping that since she's sedated, maybe she won't notice how hungry she feels.
Her shunt site is healing nicely!  We got cleared to go from daily visits by the neurosurgery docs to twice a week!
I'm still in a state of being overwhelmed that my baby has so much permanent hardware attached to her.  A shunt that is visible as a lump under her scalp on the  back of her head... and trach tubes coming from her neck.  It's true that technically some kids do get rid of their trach... but that would be so far down the road that it doesn't really affect the feeling I have now about being overwhelmed at all that Annelise's little body has going on.
It's just another piece of this journey where extreme and dramatically different feelings occupy the same space.  While I can see that this medical life is truly overwhelming... there are also so many good good moments that remind me of how God is so fantastic at organizing just what we need when we need it!  Being able to interact with Annelise more, even in her sedated state, has been so amazing!  Here's a picture from this morning when she was quite alert! 💕💖💗