Trach Day 4

 Day 4 with the trach, and day 4 of being able to look at her beautiful face because she's not on her tummy all day long due to her airway getting blocked by her tongue in any other position.  Annelise slept through most of the day, as she is still sedated and recovering from her tracheotomy.  Tomorrow morning will be her first trach change!  That seems to be a big deal because after the first trach change, done by the ENT surgeon himself at her bedside... then we can talk about weaning her off of the sedation, letting her move more, and the respiratory therapists take over her trach care, leaving ENT to now just follow her recovery progress.
Praise the Lord for no infections!  This continues to be a great desire of our hearts, especially as she is recovering from surgeries and healing the chylothorax.  Hopefully that chylo will be gone soon and then Annelise can have real milk in her tummy again!
After the trach change tomorrow, Kevin and I will also start learning how to be involved in Annelise's trach care.  We're both required to be proficient in caring for a trach before we can leave the hospital.  This is the scariest part for me, but we've found peace in some very unstable circumstances before, and with God, it's totally possible!
She will always be worth it all, a million times over, and our lives are so much better because we get this time to be her parents!!🥰
Our dear friend, Julie, made an amazing onesie for Annelise that captures that truth exactly:   love doesn't count chromosomes!