8/30

Here we are again, late at night with me trying to get my overloaded brain to figure out how to concisely deliver an update on all that has gone on for the past two days now... I know I don't have time for my usual way of just writing as I'm thinking... two days worth of that would be too many paragraphs for anyone! And I want to make it worth leaving the hospital to go back to sleep at the Rainbow House by actually getting some sleep! Still so hard to not be there with her. So here are the highlights and the not so highlights (mainly, the baby vomit) of the past two days ☺️
🌸Yesterday, Kevin and I did a trach change ourselves, and I put in the new trach!!  I did it!  Actually it wasn't all by ourselves, because I had to tap out after putting the trach in and let Kevin and the respiratory therapist finish up, because the adrenaline left over in my body was making me all shaky!😆
🌸Yesterday we started feeds!  This time no breast milk, just special formula.
🌸We got a NICU baby cam! So now we can check in to see how she's doing when we're not  there❤️
🌵Baby vomit🤢 Kevin was holding her when she spit up.  There's a chance of aspiration where she gets some in her lungs when this happens, so I hope it never happens, but I fully recognize that this is one of the more normal infant experiences that I will surely live over and over again. 😬
🌸This morning, the nurse practitioner was so excited for us that she came in to give me a heads up that Annelise's chest xray looked great!!  It has been a loooong time since we've heard the word "great" and "chest xray" together!
🌸We increased the amount of food she got today!  And I do believe our night nurse helped us to avoid another spit up situation. We also increased the time she spends on her trach collar.

She'll be getting another chest xray in the morning.  I'm on pins and needles and my brain is smooshed with optimistic thoughts and anxious thoughts about the future... will this be the beginning of the end of her chylothorax?  How much longer until we go home after that? Home?? Away from my nurses and doctkrs?  Eek! That sounds scary!
I have to keep calling back that perspective that gets away from me all the time!
Is anything too hard for the Lord? Nope.
Will He leave us to make future fransktjkns by ourselves? Nope.
Can I count on mercies and grace in the future? Yep!