Another day of no changes... Just sticking to the plan of practicing 6 hours at a time on her trach collar, not eating, and waiting for her chylothorax to heal.
We discovered today that this girl Annelise looooves to cuddle! She was fussy and crying in her crib, but as soon as she's picked up and in someone's arms, she's quiet and ready to sleep! I got a ton of quality time with her today, and Kevin did too 💖
The EEG is scheduled for tomorrow. I'm not sure what time it will be yet. Our prayer is that we get a definite answer of whether or not there is seizure activity in Annelise's brain. We're also praying for her facial muscle twitches and jerks to go away, even if they aren't related to seizure activity, as these seem to bother her.
Randomly.... Annelise has a tooth coming in! 😲 On the bottom on the left side, there it is! I'll post a picture that I also posted last night so you can see the little tooth!
Here's the tooth
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