Sunday 8/18

It's Sunday!  I started the day stuck deep in an anxious pit about the possibility of Annelise getting another mucus plug in her trach. I want to make sure that I'm real about documenting the good stuff and the not so good stuff on this journey... And this morning was not so good stuff. I understand the term "gripped by fear" in a real way on this topic.  I've been struggling with how to concisely sum up my thoughts and feelings, and how they were resolved... but nothing I write, then erase, feels like the whole story. I don't think I'm done working through this yet, but that's ok for now.

In more exciting news, Annelise weighed in at 5lbs, 12 oz
18.7 inches long
😁👍
She's growing by the littlest but still meaningful amounts!

If her chest x-ray looks clear again tomorrow... They will try to resume feeds again! Giving the timing to God, but also praying to let Him know that we miss our home and would like to get back there with Annelise! At the exact same time, I don't want to leave this safe haven quite yet though (and sometimes I want to move in and stay forever!), until we're more stable with the fluid around her lungs and have a g-button surgery so she can be fed with a g-tube.

Kevin and I ventured out for lunch to a place called "Meatball", recommended by our nurse. We got a flight of meatballs and it was really delicious! 😊 When we returned, she had a radio set up in her room, and it was set to the K-Love station out here. We love our care team for the little ways, on top of the gigantic and sometimes lifesaving ways, they care for our family! We ended the day with some cuddle time with miss Annelise❤️

I'll keep you posted about the findings on her xray tomorrow!  This is also one of those moments when I want to make sure to say Praise the Lord!  We say it when things go the way we want, and when we're in the ridiculous parts too. Any strength I have right now cannot be my own, and for that and so many other blessings, because of who He is, we're giving Him praise.