Monday, 8/5

Today was a heavy and hard day.  One of our unique, priceless, amazing baby friends went home to heaven today.  I didn't ask her mom if I could share her name, so I won't here, but I can't have access to so many relentless prayer warriors and not ask you to keep her mama and daddy's hearts in your prayers.  The Lord knows exactly who they are and sees them.
My brain is officially overloaded.  Holding space for grieving with friends as well as trying to follow along with all of the chemistry that is going on in Annelise's body.
She still has massive amounts of fluid for her little body coming out of her chest tube.  They tried different things to raise the very low co2 levels yesterday and all day today... And finally after 9pm, they found something that worked well enough to make her blood gasses and pH in the "OK" category.  We'll take it for now!
I can't remember if I included this in my update from yesterday, but the idea of Seizures being a reason for some of her issues was brought up.  There are multiple other factors going on right now though, so a test for Seizures later, rather than now, was recommended for her, after she gets off more meds.
The Lord gave me a few sweet moments today when Annelise was wide awake but not grumpy.
Also sweet is that she is 8 weeks old now!  Thank you Jesus for 8 weeks and every day that we have with her! She was fussing in the picture below but then calmed down and cheesed it up just in time for me to get a photo❤️
We're praying that God would heal up the pleural effusion that is draining her body of so much stuff and return all fluids to normal status.
Praying for our friends who are grieving the loss on earth of their precious girl.
Praying for rest from this weary road, for us and Annelise too.

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