Her chest xray looked a little cloudy this morning... But so far, the chest tube is not coming back! Praying that chest tube stays away!
Here's a pic of my cute daughter, and cute husband in the background, working away! ♥️
The rest of the day was uneventful for Annelise. She gained a little bit of weight, so now she weighs 5 1/2 pounds. She's needing a bit more oxygen support tonight. This is the trial wait and see part of finding out how much breathing support she will need. We also have to wait and see what will happen with her feeds and the chylothorax. She'll get an x-ray in about 4 hours. Praying that it shows even better looking lungs than yesterday with no extra fluid hanging around.
I had a great conversation with another NICU mom today at lunch. This mom's nicu stay isn't trisomy related, but her daughter does have a similar kidney issue to Annelise. It's just nice to know others & identify with my feelings, and are having similar experiences learning to trust God's plan beyond our own plan! I always want to let God do what He does... but I find when I think about it that I actually 'tell God what "shockingly healthy" means to me ... because I've been praying for a shockingly healthy baby... but the song that I heard on the radio today when I ventured out to try and find baby clothes for Annelise (failed attempt... Did you know Kohl's doesn't carry preemie sizes? 🤷♀️) reminds me how important it is to listen. My head gets so super busy when I'm trying to figure out why something is happening with Annelise so I know what to pray for... but it can help me rest just to recognize that God is so big that He sees what I cannot. The song definitely goes along as a soundtrack to the way I feel my faith is being stretched.
Speaking of stretching. Babies stretching after they get unswadled is the cutest thing!! I'm going to try and get a video of her doing it for you 😊
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