9/28 - Saturday.

We are doing more of the things involved in Annelise's care by ourselves... So when we go home we will be familiar with the machines and ways to care for her.  As of now... Next Thursday, or maybe the Monday after that are the probable discharge dates! We'd only wait for Monday if all of our stuff doesn't come in by Thursday.  The attending physician doesn't like to discharge patients to home on weekends, which I appreciate... Not that we plan to come right back, but we'd want lots of people working at the hospital if we did.
Baby girl slept a LOT today.  Gained 2 grams... She is soooo close to 8lbs!🥰
No puke today!  Yay!  We started her on a reflux medicine, and also shifted her feeds so she gets fed through her g-button for a longer time, so she doesn't have as much in her belly all at once.  I've got a less than 50% success rate on catheterizing... But I've got a surprisingly good attitude about it.  I even surprise myself!😆
The MRI results showed a 2mm cyst that is around the shunt.  Looks like we'll have to wait until Monday to see what her neurosurgeon thinks about that.  Praying that this can be quickly and easily resolved so we can get on with the business of going home.
I don't have many pictures because she slept so long 😴
Those are the updates for today!  We love knowing that so many people are continuing to think about and pray for Annelise as she grows.  I love being her mom, and I love our community so much!