Tuesday 9/24

Well, things didn't settle after all.  We had a busy day of more specialists, and getting tests done to try and figure out why Annelise has a bubble of something at the top of the shunt in her head sometimes.  It keeps coming and going.  Praying that it is something that can be quickly resolved... Or maybe that it will resolve on its own?  That would be cool.  I'm pretty much over the top overwhelmed right now.  The hospital talks of discharging us soon, like next week... Yet we have no home nursing set up, and the supplies haven't all been ordered yet.  It's all in the works, it's just so.much.new.stuff.
I have never had so much empathy for the kids with autism that I used to work with.  I've got serious sensory overload.  Just like the kiddos, there are helpers all around me that want to make my life better, so they teach me something, and then someone else comes to teach me about a different topic, and then another specialist has some info for me.  So much talking about new things, my head swims.  I feel like I can't keep up with all the things!  I don't even have a way to fix it.  I feel like it is just going to be crazy until forever.
I know we have so many people praying with us.  I'd like some prayers for energy for us as parents please, and for the growth needed to let go of some of our anxiety about going home. 
For Annelise, please pray for her MRI tomorrow, or for the neurosurgeon to have insight into the issue with her shunt so that an MRI might not be necessary.  Also asking for prayer for her kidney health...overall health!  And for wisdom for the pulmonologist who decides what's next for her breathing treatments and how her airway is managed.
Thank you friends and family! 
I can't wait for the days when we aren't in this gigantic transition mode!  My task tomorrow in addition to the million things that will come up, is to look for peace that comes from knowing God.  The peace that can be found in the middle of the mess... Which is where we'll be for awhile at least, but not for always.