I know God is working in my life always in ways I can't see... But it's so fun when I catch on to what He's up to! Like today... I know many of you were praying that we would make some good and trustworthy connections here in Long Beach... We saw a bunch of specialists today, and they all appeared knoedgeable and varying levels of upbeat... But our GI specialist is an answer to prayer! She came in and was super excited to meet Annelise. She started off by saying she didn't know if we were religious at all... But that she thinks we were just meant to meet! Her sister's friend on the east coast had just had a baby with Trisomy 18, 9days before Annelise, and they got heart repair in Boston because their home hospital wouldn't do the heart repair on their baby Hope, with Trisomy 18, even though that same hospital had operated on one of their other son's heart in the past! She offered that she does not agree with how the medical community at large views our kids, and that she can't change everyone, but she can work on one person at a time! I am beyond encouraged! We will follow up with her outside of the hospital for sure!
The second blessing was our pulmonary specialist, who is very willing to look into a heated trach collar🥳, and has a vibrant energy too her that is just so fun. I really enjoyed her personality, on top of the thorough way she explained things. And THEN at shift change, we discover our nurse loves Jesus too. She is lovely and is the icing on the cake of people that prayer brought us.
It has been a busy day! We weaned Annelise back to her original vent settings, met some specialists, got her picc line removed... So no more tubes attached to her body! It is her hundredth day of life, and while I still miss where we were... I am optimistic about learning to like this place too. ESPECIALLY when the specialists talk about making plans for when we go home!! ♥️😍🏡😁
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