The draining piece of the adventure these days is just the very different recommendations that we are receiving for the same baby. And I suppose I understand that all hospitals can't stock the same equipment, as there are so many options for respiratory therapy... But I still am having a hard time not taking it personally that nobody just did a little research and figured out how to give Annelise the same type of heated trach collar that she was proving successful with in Omaha. She is now on the O2 ring which provides little humidification. I am asking more questions, and often the same questions just to get more explanation, about why these decisions are made.... I know we are in the beginning process of figuring out what is best for her, and it has to take time. It took time in Omaha too. But it is very frustrating, and I don't feel part of the process in the same way that we did in Omaha. I'm just really missing those people!
We are slowly collecting some awesome folks here too. Her nutritionist is a fantastic human, there are some incredible specialists and nurses as well!
They just can't replace the great start that we got in Nebraska. Let me show you what I mean! I wish I had been thinking enough to take photos with all of Annelise's incredible NICU nurses! I've documented her "big 3", three of the nurses who we had most often, and who I came to rely on for Annelise's comfort, teaching, managing my crazy, and loving our daughter! Irreplaceable people who impacted our lives, and saved our baby's life! It's hard to say goodbye to that!
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