Friday...maybe our last Friday at the hospital?

Just like the NICU, every day is very different in the PICU!  The morning was very full of specialists coming in... At one point, I went to weigh a diaper, and when I turned around...six people were walking in the door... From 3 different departments!  They had to talk amongst themselves to take a number and decide who had to come back later😬
The trach that they wanted to use for Annelise's MRI came in, so Kevin changed the trach himself (we plan on always changing the trach at home with both of us there... But both of us have to have 3 independent trach changes done so they will let us go home.  We both have 2 so far)!
The RT and nurse who took us down to the MRI were awesome.  If there wasn't grafitti in the elevator, I might think we were back in Omaha!
Annelise did so well, and basically slept through it!  They bunched her up with so many warm blankets, after her ride through the hospital in her hospital bed... She was out🥰
We haven't heard about the results yet.
We all finally rested after the MRI, and then got to have a special first meeting with another trisomy family who went to Omaha for heart surgery last year, and came back to Miller Children's.  We met 1-year-old Grace, whom I have been following the adventures of via Facebook since I was pregnant, shortly after we found out Annelise had T18.  Grace's Mommy is amazing, and a fantastic resource and source of encouragement.  I was able to get a glimpse of what it might look like to go to Omaha when we were just considering it... Because she had already gone before us! They went home from the hospital before us too!  And Grace is thriving at home!🤩
We are tired, but also getting to the point where we are ready to be home.  We're praying through the anxiety, and want to make Annelise's homecoming a happy occasion.  We'll be freaked out, because we are Kevin and Jeanette... Kevin reminded me of the first walk in our neighborhood that we took with our former infant foster son shortly after he came to our home (he will be one next month!)...we got to the end of the block, and I asked in all seriousness if he thought we should cross the street with the stroller....you know, because of how dangerous street crossing can be?🤣. We made ourselves take a longer walk and cross the street, and we survived!  Now we are parents to a medically fragile child.  We will go slow, but I know we'll cross the street with her one day too!