Annelise Faith

Annelise Faith

Saturday, December 21, 2019

12/19/19 - Fever carries on

When you have a fever and don't feel good, it's nice to just relax and watch some TV.❤

Looks like we will be staying inpatient for a bit longer.  They suspect she has pseudomonas, a bacteria in her trach... causing the fever ☹ Apparently it's very common, can be treated with antibiotics, and so far respiratory wise she   has some more goobers than usual, but still very manageable.  The annoying part is that we got into a routine of how to manage them at home, and here in the hospital we have to be on someone else's schedule and can't just do whatever we want.  Shows me just how far we have come though!  All that hard work at home made us really know our girl and what she needs.  I've been living at the hospital with her so I can pass it on to the people caring for her.  They are doing a great job too.



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