6 month photos

One year ago today we sat in exam room 4 and heard from our OB that our NIPT blood test resulted in a 9/10 chance of our baby being born with what's called Trisomy 18.  We were lucky enough to have a gracious doctor who recognized that she can't tell the future about what would happen to our specific baby, but let us know that she would likely have so many heart and lung issues that of babies like her, only 10% make it to their first birthday.

Thankfully, I found an online community on Facebook, filled with parents of babies with extra chromosomes like Annelise.  They are the history makers, pushing the medical professionals to treat the heart and lung problems that our kids have, in order for them to be able to have a chance at life at home with their family, to one year and beyond!

Before we came to the hospital, we had a cardiology appointment to follow up on the healing of Annelise's reconstructed heart (thank you forever, Dr. Hammel at Children's in Omaha)and we got the green light to go home and live our lives for 3 more months before the next check-up because she looks so good.

Today, her regular pulmonologist is on rotation to see kiddos this weekend, and she was so pleased with Annelise's lungs, she said this may be the clearest they've ever been, and they sound amazing!

So the two big deals are well managed right now, we just need to take care of this little neurosurgery thing 😉
Praying and asking God to bless Annelise with a successful surgery and no further infections!

We're halfway to that year! Taking time to be grateful for every day with this sweet girl❤